Sjogren Syndrome Support Group Plan

Sjogren Syndrome nutrition classify PlanPunit DaveTABLE OF nitty-gritty (JUMP TO)INTRODUCTIONOverviewChallengesPROPOSED PLANLeverage PointsEffectivenessSuccess Metrics next PlanningScheduleStaffBudgetCONCLUSIONREFERENCESINTRODUCTIONOVERVIEWIn partnership with University of Houston Medicine and Technology part and American Association of Rheumatologist we be the only national nonprofit comport host to provide education, awareness, rhythmic checkup, and look for for Sjogren syndrome. In autoimmune illness the immune system bombardment and destroys the monsieur producing glans throughout the persons body. Sjogren is the second most common autoimmune infirmity in United States which effecting estimated 5 million people in United State. The Sjogren is three times much common than related distemper like, Lupus, Multiple sclerosis and it is more(prenominal) common among women then breast cancer. The nine out of the ten Sjogren long-sufferings are women. The Sjogren syndrome patients suffer from verity of symptoms that range from teetotal eye and dry mouth to chronic fatigue and muscling critical pointt pain. This disease also effect internal organs and internal nerve systems. In anticipation of people become familiar with disease and its symptoms it leave alone stay on difficult to constitute everyone who suffering from Sjogren syndrome. Thats why our community continues to counterbalance for patients who arent able to explain their diseases or confused by the some facets of the diseases. Our community dedicated to raising awareness, so some day the patient diagnoses with Sjogren then he or she allow have heard of it and testament know where to turn for project and guidance.CHALLENGESWith Sjogren the correct diagnosed is lots difficult to obtain. It depart take some 4.7 years to correctly diagnose the Sjogren, because the Sjogrens symptoms a lot mimic other condition and diseases. Sjogren is often overlooked or misdiagnosed. Patients wil l discuss dry eye with optometrist, dry mouth with their dentist or joint pain with their primary doctors. Each symptom alone wouldnt suggest an autoimmune disease but couple symptoms together will lead physicians to suspect Sjogren. This is why increasing awareness among the general state- carryed is very important. We strongly recommend Sjogrens patients get treatment induce one doctor. Changing the doctors wont cure Sjogren but it often creates confusions among the doctors and patients. Getting treatment from multiple doctors also lead to wrong medications, diagnostic and it will hurt patients financially and medically. With a help from university of Houston medicine department and AAR we provide many medical checkup, medical guideline and nutrition plans to our members so, they constantly get right advice and treatments.PROPOSED PLANLEVERAGE POINTSSjogren Syndrome incite Group is the leading advocate for Sjogrens patients. We have dynamic volunteers, medical, scientific advisory gore and researchers who work in Sjogrens and recognized nationwide. Together with this volunteers and healthcare professionals, our convention has been able to implement programs such as the first ever clinical practice guidelines for Sjogrens. This guideline gives Sjogrens physicians a road map for how to treat, manage and manage sjogren in their patients. This is just one example of our support pigeonholing on how we achieving our mission and changing the life of sjogren patients.EFFECTIVENESSSjogren Syndrome Support Group stands on our founding principal of putting the patients first. From our 10 plus patients scat support hosts to our hundreds technical volunteers we serve our members with an ability to connect with others who have Sjogrens. Our programs of educations always involve our volunteers to help review our educational materials, conference topics and Sjogrens content. Our research grants from our sponsors are also awarded based on innovations. It we wil l help us to change the field of Sjogrens the fastest to estimate the greatest suck in for sjogren patients. I believe our group is effective because of patient voice is never forgotten.SUCCESS METRICSWhat are the metrics of success for our group?The Sjogren Syndrome Support Group measures the impact and success by many variables. For example our support group manages over 50 support groups in Houston area. Prints many newsletters and circle hundreds of brochures each year. The American association of rheumatologist distributes important guidelines to each patient and provides the advice to join our support group. It will give patients an opportunity to share their thoughts with others and help others to whip from this situation. Most importantly our support group always uses metrics to good deal the success of every campaign, every program and every project. We see goals, we set objectives and then we evaluate them against the simple questions of how do these impacts on life o f Sjogrens patients.FUTURE PLANNINGAdditional support from CCHP would help us exaggerate our education and awareness programs. This support would enable us to attended more professional conferences to educate healthcare professionals. Additional reassures would also allowed our support group to distribute materials to more specialist which would ultimately assist us to grasp patients who may be suffering from particular symptoms, but didnt realize the cause could be a systemic diseases such as Sjogren. Finally, for support the patient and cure of Sjogren, more funding needed that way our support group can produce national awareness campaign and while away the 3million penitents there are not yet diagnosed.SCHEDULE (May 10 2014 revered 30 2014)STAFFWe excited about future of Sjogren and we really around pace for great discoveries, but in order to make Sjogren a household name we need everyones support and help for more awareness, raise funds and volunteers. We have hundreds of v olunteers and volunteers board of directors to help and support our group. on with that we have healthcare professionals from Medical and scientific Advisory Board (MSAB) and American Association of Rheumatologist (AAR) to stands for the wide range of specialties involved in Sjogrens diagnose treatment and research.BUDGETCONCLUSIONIt is a proud moment for us that, we are premier organization in Sjogren research and support group funding. However more funding is needed as more capable researchers are taking interest in Sjogren. Our support groups goal is to finding an additional funding to support these groundbreaking projects. Without cast up support from research we cannot fund this projects and thus thing must be turn away. Our hope is one day all Sjogrens research and support group adequately funded so patients can have the answers for their disease. Being a Sjogrens patient is challenging, but neither having a therapy to treat your disease nor understating what causing it is heartbreaking.REFERENCESAutoimmune Disease Coordinating Committee. (n.d.).. Retrieved April 25, 2014, from http//autoimmune.pathology.jhmi.edu/adrp.pdfAmerican Collage of Rheumatology. (n.d.).. Retrieved April 30, 2014, from http//www.rheumatology.org/ earmark Writing. (n.d.).Sample Budget and Narrative -. Retrieved May 1, 2014, from http//www.netplaces.com/grant-writing/developing-a-budget-and-budget-narrative/sample-budget-and-narrative.htmSjgrens Syndrome Foundation Scientific Initiatives. (n.d.).Sjgrens Syndrome Foundation Scientific Initiatives. Retrieved April 28, 2014, from http//www.Sjogrens.org/home/research-programs/scientific-initiativesSjogrens syndrome. (n.d.).Definition. Retrieved May 1, 2014, from http//www.mayoclinic.org/diseases-conditions/Sjogrens-syndrome/basics/definition/con-20020275When an Autoimmune Disorder Forces You to falsify Your Life Plans Autoimmune Disorders Center Everyday Health. (n.d.).EverydayHealth.com. Retrieved April 28, 2014, from http//ww w.everydayhealth.com/autoimmune-disorders/when-an-autoimmune-disorder-alters-your-life-plans.aspx